Thursday, October 30, 2014
Simple smiles and few words of kindness and encouragement travel quickly, spread and are not only contagious but also very meaningful in others lives~
Life uncertainties and unforeseeable events is what makes life so fragile but also everyday a precious gift we should enjoy.
Simple smiles and few words of kindness and encouragement travel quickly, spread and are not only contagious but also very meaningful in others lives.
When I have a bad day I stop to consider my great blessings and many others not so fortunate as it changes my perspective and out look very quickly.
It is about what I can learn for my experiences, trials, lessons, blessings, and gather strength and knowledge so I can pass it to my children and share it to help others.
When I consider my major surgery a few short weeks away I have no fear as I realize with no visible cancer I'm one of the lucky ones! God has blessed me so I can have my health restored to enable me to pay it forward , grab and share life's silver linings everyday.
I have been told to consider the impact of not driving for two weeks, or not picking up my toddler four to six weeks. I have been told to consider the pathological report after surgery may find a few microscopic cells in my lymph nodes and I may have several removed. I have also been told to consider not only losing all feeling in my chest for a life time but also the visual scars and looking completely different in a mirror.
For me the double mastectomy will be the less taxing part of my entire road to recovery in winning and defeating breast cancer.
Here is what I consider to be my reality and what I feel
The double mastectomy significantly reduces my percentage to ever have any re occurrence and greatly assist me in my achieving being cured in three to five years. As does the radiation after surgery.
I am very blessed to have such a fundamental support system with friends and family coming to stay so they can drive my children to car pools and help with our everyday lives.
I have also not only considered but know down to my core that not only has God healed me this far he will continue to do so. I believe I will wake up from surgery with a clear pathological report and be a survivor.
Many woman have many lymph nodes removed and are twenty year plus survivors, thus is why you have the surgery.
As far as losing sensation I could care less as the ultimate goal is to live a long full life and scars are such a minimal price the trade off and the end result of good health is far greater, I am truly steadfast in my decisions in treatment.
I will heal in God speed and am ready to have my surgery and shore up the next phase in treatment to follow by radiation. The aspect of ending treatment by late January, early February and only have a few minor surgeries later next year is the goal I am aiming to achieve an excellent prognosis, as it has been my game plan all along.
I have come so remarkably far and achieved so much and with Gods blessings am entering surgery with no detectable cancer! That is what I consider to be important! I can honestly careless about looks or lack of feeling, as it is completely irrelevant in the larger scope of it all.
My life is full of love, happiness, hope, friendship, family and driven by faith!
Please keep myself and family in your prayers as my surgery is November 13th
God Bless
www.gofundme.com/I-will-beat-cancer
Thursday, October 23, 2014
It is almost surreal to consider I will be under going major surgery in a few short weeks as I feel healthy~
It is almost surreal to consider I will be under going major surgery in a few short weeks. Do not get me wrong as I am not parochial to any body part I can live with out that has potential to be life threatening.
It was an easy decision to have a double mastectomy to substantially decrease my percentage of recurrence to breast cancer.
It is difficult to wrap my mind around the next phase as I feel healthy and have complete faith I'm cancer free. Losing my breasts, acclimating to the new picture in the mirror, enduring anesthesia (I do not do well sedated) the pain and lack of using my arms, the inability to pick up my children, complete change in normalcy in our lives and routine is all short term.
I simply can not play the odds, roll the dice because I am not willing to rick or lose what is such a precious gift.
I remain strong and truly believe God will help in my healing quickly and for me to wake up cancer free from surgery. I had someone say to me "God healed you and you where cancer free after two chemo treatments so why not trust you are healed and no surgery just walk away"
I feel God has also given us wisdom and knowledge, access to 21st medicine, the ability and gifts of the surgeons and physicians to save lives that I'm on the correct path and have made proper decisions to remain healthy.
I was by far the most difficult decision I have ever arrived at to take a pure leap of faith and close the chemo therapy chapter as I am now healing and so is my heart damage from chemo. I have an occasional shortness of breath but am getting stronger daily. My reminders are no hair, however wigs are great. The strange thing is I just recently lost my eye lashes three weeks after chemo ended. It is not the vanity aspect it is the function of them to keep dust and such out so my eyes water and are sensitive. The silver lining is the "brows and lashes" grow back quickly.
Once a chapter in treatment ends the anticipation of the next phase and the not knowing is upon me I pray and my faith shines through as I will not entertain fear, negatives, and what if's. God has not only healed and cured me, he has held me, guided me and helped me arrive at all correct decisions I have made on my path to a full recovery.
I am a very energetic, organized Mother of five whom is accustomed to a very busy life and schedule.
Now that I'm headed to surgery and the realization on my recover period and limitations are close upon me, life has given me above what my full schedule is normally.
A friend said to me between my husband and I we are giving our guardian angels a run.
Here are my silver linings as there are many~
My husband was not injured when his car was totaled last week being hit at highway speed by another driver. That driver was not injured either.
I was able to attend Sunday school with Maxson last week.
I am healing daily and God is giving me the stamina and endurance to achieve and meet my family s needs before my pending surgery.
My children are healthy!
We have an abundance of family, friends and neighbors, an amazing church family, and are in excellent company.
Please consider Sunday October 26th having lunch or watching the Carolina / Sea Hawks game at Rudino's
High House Cary~ Take out a pizza if you are unable to dine in
10% of the proceeds (food not alcohol) from 1-5 pm help assist my medical fund to pay for surgery. I will has have out of pocket and co insurance start over yet again in January as I have radiation treatments and additional surgeries~
Please pray for a successful, cancer free surgery and for God speed in my healing
God Bless
www.gofundme.com/I-will-beat-cancer
Saturday, October 11, 2014
It is very important for me to follow all signs, make the best choices in light of all the facts and circumstances, be an advocate for my own health~
It is very important for me to follow all signs, make the best choices in light of all the facts and circumstances, be an advocate for my own health, treatments, and care. A physicians egos, demeanor, aggression and temper tantrums simply are not retaliative nor important and I refuse to be bullied or swayed. I will not be a "protocol" and generally grouped with all to please anyone. When the bad out weighs any benefit its time to move on to the next chapter.
The road turns, constantly changes, and needs to be fine tuned as my journey and medical healing regimen is completely unique to me as is others on the journeys. I have met many who are true heroes and inspirations as they battle stage IV, are not responding to chemo, are children and babies, all fighting and not losing their personal resolve or faith. God too has a plan for them as he does for us all.
My port was removed on Thursday and was a wright of passage and a well earned achievement. It was a chapter ending as I know God healed my cancer early on and I am ready for my upcoming surgery. I fully believe my next chapter will be full of bright silver linings and blessing with many wonderful people and healing to come.
I was humbled to experience the Kyle Busch foundations generosity the organization contributes to help women with breast cancer in need. His wife Samantha is an amazing soul that pours time and energy into her busy life to pay it forward and help so many less fortunate with breast cancer.
Pretty in Pink foundation tirelessly works and volunteers to connect with such organizations both big and small to help so many with breast cancer.
I was able to meet and see many NASCAR drivers, pit crews, and all behind the scenes personal that make it look easy. I have a new appreciation of all the hard work contributed to making a race possible.
The pit and behind the scenes was a memorable experience. When the cars are being pushed by crews (a long line of them) you hear "car crossing" and must be prepared to jump out of the way. When you are told its not unusual to spend $30,000 on tires alone you have an appreciation for the cars and what is entailed entirely.
I walk into the next phase of treatment with very minimal knowledge of how surgery, recovery, reconstruction, timeline, and over all healing will be. I walk in with no fear and a heart full of trust and faith as God's healing in my treatments he will continue to do so.
I look forward to some knowledge and insight into my next chapter as its a step closer to healing and normalcy.
I fully anticipate waking up from surgery with NED (no cancer) and God speed in healing so I can move forward to the radiation treatments.
Please continue to keep myself and family in your prayers as it has carried me this far!
I have had many reach out and tell me I'm hard find and contact, as they have questions or wish to communicate with me.
Please leave a comment with your email address and I will be happy to reach out to you.
Please know I feel great, fully believe my cancer is completely gone, am healing quickly from chemo, anticipating a quick recovery from surgery, a clear pathology report, minimal pain, and countless blessings!
All things are possible through Christ who strengths us~
God Bless
I will update after I have my surgery date.
www.gofundme.com/I-will-beat-cancer
Saturday, October 4, 2014
There is no such thing as a coincidence as its merely God choosing to remain anonymous
There is no such thing as a coincidence as its merely God choosing to remain anonymous.
My journey with TNBC has been full of twists and turns no easy answers and certainly no easy choices to be made. I have been pushed to points I never dreamed I could sustain. I have had circumstances reek havoc on my resolve, physical well being and my emotional state as well.
I have been challenged in my faith , and know what its like to experience pure fear.
I have also remained steadfast in faith, sustained over all good health, gained tremendous knowledge, became stronger, heard Gods message, gained many friends, strengthen my family, my children and even had a few guardian angels help me along the way. And my journey has only closed its first phase as I move on the the next road to recovery.
The initial four rounds of AC chemo (adriamycin has damaged my heart mildly and I am taking low doses of two heart medications to help assist in obtaining its normal function as time will tell.
I started to experience tachycardia and arrhythmia (rapid heart rate & skipping beats) along with severe shortness of breath. I had an EKG and heart ultrasound preformed and compared to my prior heart tests before chemo began mid July that lead to my findings of my lower function. The shortness of breath is listed as a side effect of taxol the chemo medication I recently received.
I'm happy to report my SOB is getting much better as are my heart symptoms of fast rate and skipping beats.
My oncologist recommend enduring chemo that is causing my SOB and irritating my heart as I was told the taxol doesn't effect your heart the previous chemo damage is done, and I could be given medications to mask side effects and they are cumulative. You need to understand I had a complete clinical response after two chemo treatments and sat for three additional treatments. When I started taxol and was given eight weeks it was due to protocol as its the general standard for all woman with breast cancer and medicine has not studied the outcome If I stopped chemo at that point.
Every woman is different and the variables with this disease are widely great and very unique to each individual.
TNBC has a three year re occurrence rate that varies for each individual and all their factors, however after three years the odds almost diminish and are considered cured at five years.
I have weighed all facts, personal circumstances, treatments, odds, side effects, and health and made a decision to end chemo as the bad is now out weighing the good and I can no longer agree to protocol. Woman finish twelve treatments and can have a re occurrence or new cancer and some complete one or four with tumor still remaining at time of surgery and are survivors.
My individual journey and battle is unique to me however any re occurrence or new cancer rick are low and odds for me are not substantially increased by my chemo treatments ending now. ( I have taken all my antibiotics if you will and my body has had enough) and due to all factors its time for me to schedule surgery.
When I have had any doubts God has in many ways settled them and has guided me to all correct decisions and healing and will continue to do so.
My guardian angel threw a dresser over on me that lead my discovering a lump and finding my TNBC diagnosis as it was no coincidence
I knew what the correct decision was, but was helpful with any fear as another angel I had the privilege of meeting came to me after arriving last with ten minutes in the fourth quarter of my sons middle school football game and said to me.
I believe there are no coincidence's as I struggled to be at this game as we where dentin to meet. I received only one chemo treatment and headed to surgery. I am a twenty year survivor! As my point in "we are all very individual in our cancer journeys".
I have no regrets staining the chemo that effected my heart as it dissipated my cancer and tumor.
God has cured me!
My double mastectomy and radiation assists in my long term health for no re occurrence or new cancers.
I would change no choice, decision, treatment or steps made as all have served a purpose and lead me to my current point with no cancer seen in good health and ready for the long term victory.
Many different signs, guidance and forms of communication to place or keep us on our correct paths are clear as we just need to listen~
I am hoping to have my port removed next week and I will update soon. I am headed to meet with my surgeon soon and have some questions answered so I can develop some knowledge of my next chapter.
My blessing remain great and I ask for continued prayers for my full recovery, successful surgery and achieving a clear pathological report. Please pray for all the less fortunate people and children.
God Bless!
Sunday, September 28, 2014
When I turn all doubts and fears over to God and place my trust in his plan and his will, only then am I content and able to accomplish all I am meant to and prevail over TNBC
When I allow fear, doubt, worry and concern into my emotions I can not function and am not myself. When I turn all doubts and fears over to God and place my trust in his plan and his will, only then am I content and able to accomplish all I am meant to.
I was apprehensive when starting taxol and carboplatin , a new drug regimen as any chemo can have side effects. Everyone is different and all react differently. I am a strong believer that your attitude and perspective is half the battle won.
God yet again answered all prayers and turned my moment of weakness into strength as I endured no side effects at all from my 1st treatment. I was able to come home and take no medications at all. I did not need anti nausea medication nor steroids. I feel quit well and am able to be a mother and operate normally in my home.
I do have limitations as the chemo is taxing on my blood counts and lowers my immunity so I must take precautions so I stay healthy to complete treatments.
The chemo I am receiving is cumulative and builds as side effects may come later in treatment, however its a lower dose weekly and we will be able to see it coming and address it head on.
The signs that lead me on my path I am meant to be on are very clear and well defined for me. When I look and keep my eyes open it truly amazes me the answers and clarity I have.
The fundamental differences in my previous oncologist and my new oncologist only further conveniences me as to the importance of seeking the best medical care offered. I am really blessed I asked questions, took insensitive with my own health and care regimen and listen as I knew I needed to seek a new provider, as I am now receiving excellent care.
The doors that are opening for me I am a firm believer are meant to lead me to many others I can reach out to and help.
I look forward to meeting not only leaders in cancer research, charities that help so many, nurses and doctors that save and enhance so many lives, and women who have fought and won and are still fighting. Tuesdays luncheon to kick off breast cancer awareness month will be a wonderful event as I am honored to be invited.
I have arranged to have my chemo a day early so I can accept another invitation I am honored and humbled to of received. Rob and I are very excited to have the privilege to meet Samantha Bush and join her and other women battling breast cancer in the sky box to watch a NASCAR race. She and her husband Kyle Bush do so much and give to support breast cancer charity's and pay it forward to help so many others I feel blessed for this opportunity to meet them.
I have always maintained God has a plan and purpose for all of us. We all have our own bumps in the road however the signs to guided us are there, as well as your ability to see them.
I see so many that inspire me who are battling, have won, seeking a cure, providing charity to others, medical providers, paying it forward that I assure you this world is full of great people who are making a profound positive impact.
I have not a shadow of a doubt that I will continue to achieve no evidence of disease, complete chemo, heal with God's speed after surgery and win this battle.
God Bless
www.gofundme.com/I-will-beat-cancer
Tuesday, September 23, 2014
God has given me plenty of strength to prevail against TNBC as I already have in many ways! I'm ready to finish my battle and ensure all cancer cells are non existent in my body~
Its not the size of the girl in the fight~ Its the size of the fight in the girl! Lying down is not an option so I stand tall and fight as I will finish this! God has given me plenty of strength to prevail as I already have in many ways! I'm ready to finish my battle and ensure all cancer cells are non existent in my body~
I met with a chief medical doctor yesterday whom is en-charge of an entire oncology department. His expertise vast knowledge, and insight helped lead us to the next phase of treatment and best option for myself and family. Rob and I really appreciated all his answers that helped us arrive and some very tough decisions.
The unfortunate part is I will receive an eight week regimen of (new drugs) taxol & carboplatin weekly. I start Friday and end early November directly after my sons 16th birthday and just before my husbands birthday. What a great gift to end chemo and move closer to a long healthy life before the holidays.
I have struggled with additional chemo treatments as my cancer is gone on imagining with no detection. The many problems that arise are simply it has not been studied IF a patient quits chemo before the known regimens that work to help achieve a complete pathological response (no cancer cells found at surgery) what may or may not happen.
A CCR (complete clinical response) that I have achieved is an indicator but not the same as a CPR (complete pathological response).
I may or may not have any microscopic cells at all in my body since my tumor and cancerous lymph node appear completely normal, modern medicine has no answers and no current studies so we have no way to test or know. Surgery is the only way to know as when the lymph node and tissue is removed and tested. So why cant I stop chemo now have surgery and if I do not have a clear pathological report resume chemo? Due to far too many variables I must complete chemo first.
The difficult aspect and realization for me personality is I have pure trust and faith in the lord and struggled with "God healed me so why would I have any microscopic cells in my body?
And since the chemo killed a large tumor and cancer in my lymph node why would it of not destroyed any puny/tiny cells that would be floating around?
It is certainly a large pill to swallow hearing "due to no studies have been done with under eight chemo treatments" to know what the outcome would be, so I must endure all eight additional treatments.
I prayed and all answers are very clear~
God did heal me and protected me against major side effects and blessed me with sustaining good health through the roughest AC chemo drugs I have now completed.
My path was very well lit and I was guided to a specialist yesterday as the circumstances where no mere coincidence that led me to the chief medical oncologist who is now my physician.
I have been a rule bender a risk taker and I have beaten all odds numerous times in my life. However this is a disease I must not take any risks~ I'm unable to roll the dice as I am not willing to lose what is so precious that is on the line~
God led me the my new oncologist and I trust him.
I am told the new drugs are far less taxing than my original drugs I had previously. I am told I will sail through my weekly regimen with ease and much less side effects as I pray I do.
I will be given a hefty dose on benadryl through my IV this Friday for the 1st treatment as the allergic reaction is prominent with taxol. Once we see that I am not allergic to it I can forgo benadryl with my additional treatments. I will not need to endure any more shots at home, and only have anti nausea drugs as needed not mandated basis, so much less drugs to endure than previously. Eight weeks in the scheme of things is a small task to help me arrive at NED ( no evidence of disease) when I wake up from surgery!
We are aiming to complete surgery early December so I will be healed somewhat by Christmas and our youngest 2nd birthday.
As a mother I can look at my children and be able to tell them your mom completed all medical regimens, did all medicine had to offer and fought with all I have to help ensure no re-occurrence of cancer and a long healthy life.
I have many silver linings as my additional treatment called for 12 additional chemo's and with Gods healing hands it has now been reduced 30% to 8 and dropped off an entire month of treatments.
I received a phone call from the director of Pretty in Pink foundation and have been invited to their 10th anniversary luncheon to kick off breast cancer awareness month.And hear from many speakers and front leaders that help many battle cancer in hopes of a cure. Very honored to attend this event.
I was also told that Samantha Bush "NASCAR driver Kyle Bush wife" was moved by my journey with TNBC and has invited me to Charlotte motor speed way to a race to meet her.
I appreciate all the prayers and support and its very humbling and the support helps in my recovery.
I too am working hard to support other women on their journeys with breast cancer as that is what this is all about. Paying it forward, reaching out and doing all you are able to help others.
I have always maintained that we all have our challenges in life. At times regardless of if you crawl or even claw through toward the light on the other side not only will you arrive stronger, enduring life's lessons gives us knowledge and insight and places us on a better path.
Please continue to pray that I will tolerate the new drugs and complete this last phase of chemo treatments healthy and please pray as I do for all the less fortunate people and children
God Bless
www.gofundme.com/I-will-beat-cancer
Wednesday, September 17, 2014
Never with my TNBC stage lll was I in fear of my life~ I now find myself in a brilliant predicament
I did not choose this journey and disease as no one would willing choose an illness. It knocked on my door and picked me on my turf and home front and my immediate choice was to fight. Never even with my TNBC stage lll diagnosis, and when I was warned and told how aggressive triple negative breast cancer is was I ever in fear for my life.
Not for a moment have I ever envisioned losing the battle, war or certainly not my life. I have just always felt down to my core I was going to win this battle and eliminate my cancer and become a survivor. Your attitude is half the battle! If I can fight so hard with five kids you too can prevail over any of life's challenges as all you need is faith and to pull from your inner strength.
I had moments with the initial diagnosis before my pet scan wondering what I was up against, but also knowing I was up to fighting anything.
I now find myself in a brilliant predicament as I have had a complete clinical response to chemo and my ultrasound confirmed my tumor and positive lymph node no longer have cancer after my 2nd chemo treatment~ I am such a minority that I will see specialist at Duke to map out the next few chemo treatments to finish this phase of treatment. All we are now doing is chasing any microscopic cells I may or may not have so I have an excellent pathology report of no cancer at surgery.
When I think about what a miracle God has bestowed on myself and family I feel raw emotion and gratitude words can not express. Actions are in order as I will always pay it forward and help all I am able to!
It is important for me to share in hopes that I can be of help to others. I fired my oncologist sadly as he is over run with patients and under staffed with a few whom should not be in medicine and entirely to many mistakes have been made.I am not condoning anyone doing this under going medical treatment unless you have another physician to continue care with. As a patient you are entitled to ask questions, disagree, seek additional options and most importantly receive excellent medical care.
I was due to to undergo 12 additional (different drug) chemo treatments weekly. A regime that was handed out to me when I initially met my oncologist and had cancer. Before he had any idea what God's will can do that I was going to eliminate my tumor and lymph node after two chemo treatments.
I prayed and knew God healed me and to endure 12 more treatments was an over kill to say the very least.
I had a leap of faith and chose to not sit in the chemo chair for the start of the new drugs. It appears I was correct in trusting in God, and my own feelings. It seems I only need under half of my initial 12 week treatments. Had I not of trusted in God or my knowing my own body and listened to that inner voice I could of received a double dose of chemo I did not need and that is quit frightening.
Please listen to that voice "your instinct" and trust as chances are you feel that way for a reason.
My path remains the same I still feel a double mastectomy is the best option for myself, children, husband and family~ I'm just an incredibly blessed lady who will now receive a whole lot less toxic chemo!
I will update after I hash out my new regimen and approximate chemo end date and surgery date.
I ask for prayers that this last phase in chemo ensures me going to surgery cancer free with a clear pathology report. And I tolerate the new drug with no side effects~
Please pray for the two year old and the mom with cancer in many organs still fighting! Who are my hero's!
Please help me pray for all the less fortunate people and for great outcomes!
www.gofundme.com/I-will-beat-cancer
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